Patients’ Interests Must Come First

Patient Privacy
Trust is at the core of our relationship with patients. They own and have full control of their data, they can keep it for themselves or may elect to  share, donate or be compensated to drive research, better disease interventions, treatment planning or drug development.  Patients believe that data, when shared with a purpose, anonymously, in an aggregated format could inform healthcare stakeholders, public health policy, their peers and care partners to improve patient care and outcomes.
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‍Discover and Share
‍There are many ways to get better and to manage diseases which can potentially be further explored - tried, tested and validated. The Real World is where actual experiences of patients are practiced and much can be learned from each patient’s experiences in terms of different approaches to diagnosis, intervention, prevention and treatments.

‍Bring Science and Community Together in Partnership and Alignment
‍As it is important for the community to recognize the value and impact of scientific pursuits and rigour, so too must Science and Medicine acknowledge that there are limitations to traditional approaches. The power is the fusion of science and the real world experiences from the community.

‍Embrace Neutrality
‍Healthcare has many competing interests that have traditionally become the source of dissatisfaction and frustration from patients and other stakeholders, high costs of care, sub-optimal care, treatments that do not work for the majority, and patients denied appropriate care and more. The patients themselves are the neutral force to help stakeholders set aside their competing interests and unite around care, improved outcomes and better quality of life for all.

‍Self Care But Let’s Act TOGETHER!
‍Healthcare has been mired with disjointed steps that sometimes end up being expensive, time consuming and provide sub-optimal outcomes to patients. It is time for the community to try, test and validate bold, courageous ideas in preventing illness , promoting better care and finding cures.